Tuesday, May 21, 2013

While she is napping

Spring has been a season of growth and change in our home.
Some one appears to be getting taller,
I look forward to seeing how much she has grown
During her well check on Thursday.
She is scheduled to have blood drawn to check her anti- seizure meds
we will also be checking her thyroid and vitamin D levels.
I'm not sure if we will add more to the list at the pediatricians request or not.
I do have concerns since someone has been catching everything that goes around,
She doesn't put her hands in her mouth and we wash our hands frequently.
She has also been very thirsty and having to potty quite frequently,
Of course I realize both go hand in hand. I'm not overly concerned but when added together
They could all be symptoms of other issues that would need to be diagnosed.

Having therapy 3 days a week has been pretty grueling.
If she was compliant it wouldn't be so tiring,
She gets very excited,
Talks about her teacher, talks about school,
Is happy to see her teacher at the office when we check in
Walks down the hallway with a spring in her step.
The minute she walks into the room things change quite dramatically.
Night and day.
She does seem to prefer some of the teachers over others,
Understandably so, her OT is very firm and has a strong accent.
Husband and I are concerned that she doesn't understand her easily
and wonder if she finds it frustrating. She also talks a lot.
Repeating instructions over and over and over.
At home I make a request and wait for her to decide to cooperate.
I doesn't even take 20 seconds for Lil G to decide to do what is asked of her.
But the OT keeps on and on, then grabbing hands and trying to force her to do the task.
Lil G has a few tasks that are very difficult for her, it's hard for me to watch her try, and fail repeatedly, then get angry. I don't know what the answers are, if there are any.

We love love love the Vision Therapist.
She is soft spoken and very deliberate about things.
I am so sad we will miss this Friday with her
We will be attending a Parents of Blind Children conference together.
I hope to meet new people and learn new things.
Two of the ladies have been very supportive.
There is child are available, I am hoping all goes well.
I have already given papa the responsibility of checking up on her,
Sneaking out to possibly give her nap time etc.
The two of them really are as Forrest Gump woud say," like peas and carrots".
I am hoping this trip will give him a much needed break from work responsibilities.

We've also learned about a 2 week summer program in July.
The BELL program was developed by the NFB
for students to have intense Braille training each summer.
I've talked with the director of the program in Atlanta and feel like it would be an incredible opportunity for Lil G. It would be a hard two weeks tho, it runs from 9-3:30 each day and we will be staying a good drive outside town with my parents. I need to figure out what time we would have to leave each day to see if its physically possible. My babysitter has even offered to travel with us to be a mommys helper.

I hope this finds you and yours doing well.

Friday, May 10, 2013

First vision therapy lesson

Grace met with her TVI for the first time today.
The teacher and I have e-mailed
and talked on the phone a few times since her first evaluation in Nov
And second assessments in February.
I was apprehensive.
I wasn't sure if we were on the same page,
And frankly I've been concerned at what this would look like.
My love of learning and desire to "get it right" sometimes set me up for unmet expectations-

Lil G has had three weeks in her therapy classes and this was the first with the TVI.
There are only 2 in our whole county. She teaches preK- 12th grade.
I love her quiet demeanor and walked away from our session today
Happy, proud, and excited about our future.
I could tell she put thought and effort into planning our time together.
Here are some photos of the folder she created for us.
It has slots for homework and forms to return
and a notebook for me to write down questions/ ideas.

She let Grace try out some special hi lighters and paper for children to draw on with visual impairment. The water in the ink actually causes the paper to swell like a sponge -
You can feel the picture!
She also sent home a stylus and slate for Lil G and I to play with
to work on strengthening her fingers and feeling the Braille dots.
Most importantly we are trying to get Lil G used to using her fingers
Loosing some of her apprehension at feeling things.
Lil G also got a sticker! A green smiley face that is tactile! She was so proud.

I brought some of Lil Gs new books in with us
so she could see what we are using at home.
I purchased Braille alphabet stickers to put in a few of her favorite books
It was fun to have someone appreciate what I was doing.

Once we arrived home and ate lunch
Lil G walked out, laid her head in my lap and whispered,"come on. Come on" grabbed my hand,
Signed,tired. Bed. Then said,"nap". I asked, "Are you tired? You want a nap?"
She loudly exclaimed AND signed " yeah!" Yes.
She ran to her room and climbed in her bed. Therapy is hard work!

Here are some photos:

Wednesday, May 8, 2013

If you can't say something nice.....

We've been picking one foot up and putting it down in front of the other.
I haven't blogged because:
A. It requires effort and thought.
B. I don't want to be a downer. I've been trying to keep things upbeat over here.

I thought Id just be real. I know I feel better knowing " I'm not the only one"

Our 13.5 year old Great Dane finally had to be taken to the vet to say good bye. I had hoped she would pass in her sleep. Couldn't bear to let it get worse. Very hard decision. It's been a week now and I hate the forgetting and remembering process- waiting for her when letting the other dogs out. Seeing her bed empty. You know......

Then lil G came down with a stomach bug that night. I'm sorry, I don't like nursing bad tummies. It takes my control way out of my hands. Nothing I can do to fix it. I hate that.

We started her speech and language, OT, and vision therapies after the lengthy evaluation process. I thonk thats where weve been getting the tummy bugs. I am trying to focus on the good. Really I am. It's hard. I will share the worksheet G's speech and language teacher did with, I mean for her. Was the handwriting there for G's benefit? For me to read the prompts? You see-