Today I am taking part in a blog hop with Becca
Ive been at a loss at what to post in 31 for 21 this year.
I thought it would be easier actually having a child with Down Syndrome.
Last year my head was still spinning -
we had only been home Since the first of August,
I was still the "new parent". Napping when little G napped,
trying to find my cooking Mojo.
Playing in her room with her, watching "signing time" videos.
Just trying to get my head above water.
I dont know much about her first 4.5 years.
I am hoping that when her baby book is ready
it will shed some light on things we missed.
Due to the language barrier we came home
with many unanswered questions.
I know that she was born with congenital cataracts,
she had surgery and they tried using contacts to correct her vision.
pictures of her learning to walk the Fall she turned 3.
I know that she was ready to potty train when they tried it the Fall she turned 4.
They thought it would be a difficult process- took less than two months.
It surprised me hearing this story - I would have started trying earlier
which might have led to more frustrations.
She wasnt speaking last year
we took the first three "signing time videos" to Ecuador with us
and played them in Spanish mode. That was a God send.
We sent those to Ecuador for the children wth special needs that we had to leave behind.(they were amazed at the progress she had made those 8 weeks.) She has over 350 signs now,
we are always talking, never signing instead of speaking. Signing together with speaking.
I am shocked almost daily at a new sign or word spoken,
yesterday she said and signed "baby goll" as she held her baby doll in her arms. (signing one handed!)
She tears paper and plays with clothespins to develop her finger muscles.
We play with shape sorters, she started with one with only 5 shapes and now works with 12. (I separate the shapes into piles for each side. Eventually I will add to the pile until all of the shapes are together to choose from.
We listen to music, her sign language videos came with CDS with the songs on them, classical music, and an old Wee sing CD. She loves 80s music and the contemporary Christian music we listen to. She enjoys chunky puzzles and books. I keep a basket of board books at her level so she can pull them out and put them away whenever she desires. I believe its building a foundation for future love of learning/reading. She has a small tricycle and wants to be succesful.
She had a hard time walking well when we first met her.
This was due to her not wearing her glasses as she should.
We dont know what happened- she has no lens so is legally blind without glasses/contacts.
I dont know if the caregivers didnt understand this
or if it was just too hard to keep the glasses on her.
(She is adamant about what she does and does not want!)
She has worn contacts since last fall and it gives her a better range of vision.
She does well with them, its dependant on if her allergies are bothering her and what we are doing that day. (going to the pool etc.)
I dont want to have my fingers in her eyes several times a day
so some days we just put the glasses on.
The contacts are very expensive and the last thing I want is to be hunting a contact-
weve learned to put her in sunglasses in the car to keep her from rubbing her eyes when we arent watching
and I keep her hair pulled severely from her face
to keep the little hairs from tickling her.
She loves Sesame Street- watches two each morning , we skip Abbys flying fairy school.
She loved Barney in Ecuador - I occasionally let her watch it but like to limit the time we are watching TV and feel like she will learn more with Sesame Street.
We are using several books from Woodbine Publishers
purchased from Amazon to learn to read,
I try to only spend 15 mins a day or less on each game,
keep the success rate high.
I found these CD's and thought they would be really helpful.
I wanted to share them with yall in case......
Little G heard me play a couple songs
and was instantly by my side dancing. I guess they passed the test!
There were quite a few more listed on this page
She already helps around the house.
She feeds the dogs twice a day
(takes it OUT sometimes too!)
She also puts the silverware in the drawer.
This is what Down Syndrome looks like for our family.
As G adjusts to family life, we really are more alike than different.